Sickle Cell Personal Health Navigator (PHN)

Help shape a tool built with and for the sickle cell community.

Lumiio and AiRare are building the Personal Health Navigator — an app designed with and for sickle cell Warriors to provide support between visits, for the moments your care team isn't in the room.

No prep needed. Participate as much or as little as you'd like. You can opt out at anytime.

How would you like to take part?

Please feel free to choose any or all.

Listening Sessions

An open conversation about your experience with sickle cell disease. No preparation needed. We will follow up with you by email to coordinate a time.

Happening now

Prototype Co-Design

React to and shape a working version of the PHN. Two short sessions: share your first impressions, then see how your feedback was built in.

Starting in the next few weeks

Our team will reach out to coordinate sessions once we're ready to start this next phase.

Beta Testing

Use the PHN in your real life for 4–6 weeks before launch and tell us how it goes. Early participants have a chance to receive a free wearable.

Starting in the next few months

Select Listening Sessions or Prototype Co-Design above to indicate interest in beta testing.

First name

Email address

Which best describes you?

I am living with sickle cell diseaseI am a caregiver

Which type of sickle cell disease do you have?

I consent to Lumiio collecting and storing my first name, email address, type of sickle cell disease, and participation preferences so the team can contact me about the patient engagement activities I selected. I can withdraw my consent at any time by contacting Lumiio.